Thursday, June 7, 2012

Feeling great!

To start off, the main reason I do not update my blog frequently is usually because not much is going on...that's a good thing.  So if you're wondering how I am doing and haven't heard for a while, just assume I am improving.

I am doing much better.  I have been done with chemo for a while now, thus my energy level has increased and I am able to be more physically active.  I went hiking twice last week, once with my 6 year old nephew Tanner, who ran down probably 1/3 of trail.  The great part about this story is that I kept up! Wahooo!  One of the worst feelings is chasing after kids and not being able to catch up with them even though you are exerting every ounce of energy, seriously!  I'm getting back into the groove though and making up for lost time, which equals lots of extra teasing.

Onto the medical inquiries.  I met with my doctor last week and he said everything is looking good.  The main indicator of how I am doing however, is how I am feeling.  I am super conscious of everything going on with my body, no ache or pain goes unnoticed.  I will continue to go in for infusion once a month for zomeda (for my bones-not chemo) and I will have a CT and bone scan the end of July.  The next time I will meet with my doctor will be right after the tests; to get the results.  I am still taking tomaxifen and will be for as long as it is working.  If for some reason it stops working, I qualified for a study which would begin this fall.  Cross your fingers that I won't have to take an experimental drug, but that the tomaxifen will continue to take effect.  I met with a genetic counsellor two weeks ago and am waiting for those test results which will take a few more weeks.

Funny bald moment:  I tend my sisters kids while she teaches violin on Wednesdays and while walking down the stairs (without my wig on) during one of her lessons, the younger sister looks at me and says, "Are you the mommy or the daddy?"  Her mom was appalled, but I just laughed and kept walking.  I left that one for Dre to explain, but at least I got a good laugh out of it.  I guess to a 5 year old, a bald person wearing jeans, a sweatshirt and chacos could be gender neutral.  I love that children are so honest, they just don't have filters...maybe that's why I relate so well.

I'll let you know when I find out about the genetic test, in the meantime, just assume I am doing well!

p.s. Does anyone have a remedy to be able to sleep better?  I have a difficult time falling asleep at night, and I wake up long before I would like. I'll try anything!

p.s.s  I am also looking for a car. Something small under 100K miles within $5000.  If you hear of anything, give me a shout. Thanks!